This little girl, affectionately known as “Voldemort,” was born without a nose due to a rare condition 💔😮 Despite her nickname, she defies expectations with her incredible spirit and sweetness 🥰❤️ Find out more about her in the article below 👇
Meet Tessa, affectionately known as “Voldemort,” who was born without a nose due to a rare condition called complete congenital arhinia. Her extraordinary journey challenges our view of what makes someone truly remarkable, showcasing incredible resilience and redefining beauty.
Arhinia is a rare condition in which the nose fails to form during pregnancy, resulting in Tessa being born without a nose and unable to smell. Despite these obstacles, she approaches life with remarkable enthusiasm and determination.
Tessa’s parents, Grainne and Nathan Evans, learned of their unborn daughter’s condition during a five-month ultrasound scan. Although they were initially shocked, they committed to giving Tessa the best possible care and support. After her birth, she needed immediate medical treatment, including a tracheotomy to help her breathe. At eleven months old, she underwent cataract surgery.
At two years old, Tessa underwent major surgery to place prosthetics under her skin, paving the way for a future nose reconstruction. The procedure involved bone and skin grafts and was carefully planned to accommodate her growing face.
Tessa has adapted well to life without a nose. She breathes through her mouth and has become accustomed to not being able to smell. Her joy and positive attitude are a testament to her incredible spirit and remind us that true beauty comes from within.
Tessa’s story has inspired many people around the world. Her courage and strength show that with determination and support, any challenge can be overcome, offering hope and inspiration to all.